Grace Anne Nugent
The resources and links here helped me to carry Grace
to term and handle what came afterwards.
- Be Not Afraid. Excellent website
with many stories of women who have carried to term
plus resources.
- Carrying to Term Pages -- This website is writtenby a
woman who had a baby with ancencephaly (a fatal
diagnosis). It is filled with lots of practical
advice. The "Practical Tips" section was very
helpful. It had other people's birth plans. I used
these to get ideas for writing Grace's birth plan. A
terrific, practical resource.
- Carry to Term with Serious Diagnosis Brochure (PDF format) -- A guide for parents who have received a serious prenatal diagnosis
- Morning Light Ministry- Another excellent website.
A lifeline for me
when we first found out. They have a booklet called
Hope in Turmoil which is a must read. You can get
info on getting support before, during and after your
baby's life. Wonderful.
- Trisomy 18 Support Organization. You will find a
community of people who
have lived and survived the trisomy 18 roller coaster.
There is a wealth
of support, including a live chat twice a week.
- Contact your local Hospice before your baby is
born. They were so wonderful to us before, during and
after Grace. My children and I are continuing to go
for counseling. They were also a very important part
of taking her home.
- Sisters of Life, in the Bronx, NY. This is a
group of nuns whose purpose is to support women in
crisis pregnancies. Believe me, trisomy 18 is a
crisis pregnancy. They prayed for us and got us
connected to support from the very beginning. Sister
Mary Dolittle was a tremendous support. Her number is
718-881-8008. You can tell her I referred you. She
and her sisters will help you each step of the way.
- S.O.F.T.-
Support for trisomy 18, 13 and related disorders.
Good resources about trisomy 18 and living with
trisomy 18
- Rainbows Down Under - Extensive trisomy 18 information and experiences of
families
- TrisomyOnLine.org
Trisomy Resources
- Tiny Angels -- Tributes to tiny angels and their families.
- T18 moms -- Get help making a website if you are a family with a T18 diagnosis, or list your website here so others can find it more easily.
- Witness to Love: The Short, Beautiful Life of Grace
Anne Nugent by John Burger. An article about Grace in
the National Catholic Register, January 2003.
- Letters to Gabriel by Karen Garver Santorum. CCC of
America. 1998. This is a wonderful book written by a
mom who got an adverse diagnosis for her son Gabriel.
It is an account of her and her husband's journey when
they decide to carry to term. Very powerful. A "must
read" if you are carrying to term.
- Jonathan Dobkowski Website : The story of a family who
carried their son Jonathan to term with a fatal
condition.
Abigail Grace Wilsford Website - Written by her mom who carried her daughter to term with trisomy 18. This site is an extensive "how to" on t-18 and carrying to term. Excellent.
Living with Trisomy 13. Written by a mom that carried her child with trisomy 13 to term. Many stories of families who have carried with a trisomy 13 diagnosis. Very practical, hopeful and inspirational.
www.livingwithtrisomy13.org
Carrying To Term with A Negative Prenatal Diagnosis. This site is written by a mom who carried her baby to term with thanatophoric dysplasia type 1 (a fatal form of dwarfism). Resources, support and personal stories.
www.adventuretech.us/sidney
Other links
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